The stark statistics hide the human story behind this disease. By sharing their stories, patients and families are able to put a voice to their incredibly difficult journey and connect with others who have been through similar experiences.

Katrina's Story

Krystyna's Story

Maree's Story

Rayna's Story

Sarah's Story

Susan's Story

Tara's Story

Tim's Story

Brad's Story

Vassie's Story

Wendy's Story

Connie's Story