Stories

The stark statistics hide the human story behind this disease. By sharing their stories, patients and families are able to put a voice to their incredibly difficult journey and connect with others who have been through similar experiences.

Avner & Caroline's Story

Share your story

Ryan's Story: Part 1 - A Survivors Story

Ryan's story: Part 2 - Keep on Fighting!

Kristin's Story

Jess' Story

Hatfield Family's Story

Jacqueline's Story

Kate E's Story

George's Story: Part 1

George's Story: Part 2

Kate P's Story